54 photos
6 videos
2 medical documents
Firework!
Sweet girls!
Gorgeous.
They were successful!
Grandpa and his friend Dick took the big girls fishing!!!
Snuggles with my Carolyn.
I talked Daniel out of the house.
Going to the lake!
Dress rehearsal.
Photo op with mama for my ballerina.
The little girls have been sleeping in a tent often lately!
A pirate with a homemade hook walked into my bedroom the other morning!
Jordan hanging out in a sunny spot in the morning.
Ballerina’s eating snacks and playing!
Anna’s ballet class hanging out at the park!
Lake day setup!
The lake setup!
My big boys.
Daniel’s first experience at a lake.
I love Brian’s hat.
Busted out my swimsuit.
It was a bit chilly!
Good time.
Shirtless boys. 🙂
Cute!
<3
Love this brave boy.
After a long time of sitting in the shade on a blanket, Daniel gave the water a try!
Gotta make sure Jordan doesn’t throw rocks at anybody.
Can’t believe we were successful!
Lake day!
Praise!
Anna’s fans.
Well done, Anna!
Warm enough to play in the pool a little and warm up in the sun a lot! Daniel does not want to get into the pool, but we dragged him outside anyway.
We have rough times sometimes. This time I was glad that Jordan’s head missed the switch when he was raging and hitting his head on things. Poor boy, he does still experience pain when he hits his head on purpose. 🙁
Our blueberries are getting rip!
Time for the Molalla parade with family!
Look who LEFT THE BLANKET because he wanted to play in the dirt!
Every time we moved him (because he was VERY SCARED of the big trucks, honking and sirens) he would cry to go back to the “gray floor!” Needless to say, he had a bath later.
Jordan needed help to stay happy and wasn’t interested in watching for and picking up candy, but we all had a nice time!
My girls and my sister’s kids were in the parade!
My dad taking a picture of us taking a picture of him!
BBQ at Melissa’s house!!!
Daniel was SO RELIEVED to be gone from the parade and just grinned and snuggled into his blanket with his music. (speaker on left)
Sparklers at 10pm! (Camera makes it look lighter than it was)
The girls stayed up past 10 for fireworks!
Crackling!
Bright fountain!
Some medical documentation for both the chromosome microduplication we learned Daniel has (does not cause arthrogryposis) and some other related chromosome stuff:
rarechromo.org/media/information/Chromosome%20%203/3p26%20deletions%20FTNW.pdf
ncbi.nlm.nih.gov/pmc/articles/PMC1182094/pdf/AJHGv74p1286.pdf
Notable associations of this gene being disrupted are: small stature, developmental delay, autism
I’m still digesting.
Videos:
Daniel being cute at mealtime
Dress rehearsal videos:
Playing outside:
A happy busy family! Thanks for sharing!