I’m really rotten at keeping secrets. I figured out I can share Daniel’s profile page on Reece’s Rainbow! “Drake” is his pseudonym. “Daniel” is the name we will give him. I cannot share his birth name publicly at this point.
Here is the URL of his Reece’s Rainbow profile: http://reecesrainbow.org/113696/drake-1-53
I’ll cut and paste the info here also… I’ll answer questions it’ll bring up later.
Age: 3
Diagnosis: arthrogryposis
Medical report indicates contractures are at knees and 4 fingers
Videos from November 2016 show him sitting unassisted, making sounds/verbalizations to express pleasure and react to desired toys, playing appropriately with toys (taking blocks apart, interacting with stacking cups by putting them in/out, and shaking a shaker toy. He has full use of his index fingers and thumbs with a well-developed pincer grasp. He uses his other 4 fingers on each hand to help cup objects while he holds/manipulates them. He moves around on the floor on his back while swinging his legs to get to a desired location. The video shows him moving across the room to get to a desired toy. He interacts appropriately with staff. He is in an orphanage where children often have a lack of exposure to toys and developmentally appropriate activities. Drake’s developmental delays are believed to be a result of living in an orphanage.