Daniel is a darling. He really is a treasure. The girls love him and are always interrupting their meals and chores to go help Daniel. Yesterday they were all sitting on the couch watching Mr. Rogers… I asked why they were watching tv without asking me first. They said they turned it on for Daniel. So obviously, anything is okay if it’s for Daniel.
We love having a baby in the family.
Daniel is bright and curious. He learns quickly. He has a really limited scope of interests at present… limited primarily to cords, wires, plugs and music.
His health is stable and he is pooping on his own without any medical supplements! I have a healthy food plan for him and am glad to have a feeding tube, because he would not be eating much otherwise and what he does eat would be really difficult. With the feeding tube, the stress is off and we can build trust and a relationship before asking him to do something stressful for him.
We have had a couple weeks off of medical appointments, which has allowed me to get my “feet under me” so to speak. My personal reserves have refilled to something that is shallow, but no longer withdrawn. My emotions fluctuate more wildly than I’d like. (shrugs) One day at a time.
Tuesday we meet with a surgeon about Daniel’s funny diaphragm and will get closer to finding out if we need to be concerned about it. Also we will schedule a minor surgery for undescended testicles. (Leaving them up in his abdomen increase his risk of cancer signficantly and also reduce fertility) Hopefully it will be minor. I keep telling myself that. Speaking of minor surgeries, Jordan will be going under at the end of the month to have his ears cleaned out and probably tubes placed.
We’re barely doing any homeschooling, but the kids have picked out a kit every few days or so to explore. I also gave them a special chore chart for earning summer camp this summer. It’s good to have special things to look forward to. Speakign of special things – Thanksgiving is going to be very low intensity this year. Christmas too, but I think we’ll actually get together with some family a bit for that.
Enjoying being home and slowly rediscovering my life….
A few photos and videos:
Feeding therapy for Jordan and Daniel consists of the girls playing with food and the boys being invited to play with it also. The girls eat as they play. The boys…. mostly throw.
Hip hip hooray it looks like a happy day!!! Everyone seems happy!! Thanks for sharing!