Author Archives: atruerarity

About atruerarity

Parents of two girls. Bringing home one boy. One boy with Jesus. Loving one other little boy and fundraising to help him go home to a family.

July

The girls attended one week of day camp, Anna going to a horse camp and the girls to regular day camp. Daniel likes lots of music, but he especially appreciates the dramtic:

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The Cat

We’ve been inviting our cat to eat inside, because if we ever get a second cat, we need to have a place to slowly introduce them… like the kitchen where the food bowls would be. Anyway, our healthy, content, excellent-hunter, … Continue reading

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Cousins’ Birthday 2018

My sister has five children (number six is due in less than a month!) and of course we have five children. We live just over an hour apart from each other…. going back and forth to birthday parties has neither … Continue reading

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It’s Summertime

54 photos 6 videos 2 medical documents Some medical documentation for both the chromosome microduplication we learned Daniel has (does not cause arthrogryposis) and some other related chromosome stuff: rarechromo.org/media/information/Chromosome%20%203/3p26%20deletions%20FTNW.pdf ncbi.nlm.nih.gov/pmc/articles/PMC1182094/pdf/AJHGv74p1286.pdf Notable associations of this gene being disrupted are: small … Continue reading

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A Moment in Time

Maggie is clipping her fingernails in my bathroom, half dressed for the day and still with the night’s tangles in her light brown hair. She’s supposed to be doing chores, but I suppose clipping nails is always timely. Jordan is … Continue reading

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