Catching up #3

Here’s another peek into our family… September this time!

A forced smile that makes me laugh and a frame full of capped honey that makes me drool!

A forced smile that makes me laugh and a frame full of capped honey that makes me drool!

Chopping up the honey to drip out through a strainer.

Chopping up the honey to drip out through a strainer.

Almost all cut out! It's so beautiful!

Almost all cut out! It’s so beautiful!

And so delicious!

And so delicious!

All ready for the first day of school!

All ready for the first day of school!

Waiting for the bus.

Waiting for the bus.

Maggie doing her math. That purple inflated, bumpy thing has been great for helping her focus on bookwork.

Maggie doing her math. That purple inflated, bumpy thing has been great for helping her focus on bookwork.

We do school in our pajamas!

We do school in our pajamas!

Fourth grader hard at work.

Fourth grader hard at work.

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See? Pajamas!

See? Pajamas!

Anna is in ballet again this year and I love watching her.

Anna is in ballet again this year and I love watching her.

We said farewell to our sheep this September. We needed fewer outdoor chores.

We said farewell to our sheep this September. We needed fewer outdoor chores.

Carolyn turned four years old!

Carolyn turned four years old!

Watching her open regifted toys from her sisters was the best part.

Watching her open regifted toys from her sisters was the best part.

Video of straining the honey:

Adorable video of Carolyn receiving one of Anna’s stuffed animals as a birthday gift:

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Catching Up #2 – County Fair

We went to the county fair just once this year (instead of our usual two trips) and we all went together – Jordan included. This hasn’t been successful in the past, but this year was really fantastic! Part of the reason for our success is that Jordan has a stroller again! It’s really more like a wheelchair, but functionally is a larger sized stroller. This helped him rest when he was fatigued, helped him have a familiar and restricted space to lower his anxiety and was handy for the other kids too as needed. He really did great with all the noise and action – so did the other girls! They all got to go on a few rides (which I took the pictures of), we took in a few fun shows and ate overpriced fair food and kettle corn. It’s something we look forward to every year and I’m happy to say this year was a success. I love watching the kids’ faces as they ride the carnival rides… and this year for the first time, I got to see Jordan on some.

Jordan was pretty curious about the spinning carousel.

Jordan was pretty curious about the spinning carousel.

Buckled in!

Buckled in!

Seeing the sights.

Seeing the sights.

Merry go rounds are still a favorite for all the kids.

Merry go rounds are still a favorite for all the kids.

Maggie chose a zebra!

Maggie chose a zebra!

It's so fun to watch them! There's no way I would get on something that would spin myself, but I take pictures and close my eyes for long periods and I do okay.

It’s so fun to watch them! There’s no way I would get on something that would spin myself, but I take pictures and close my eyes for long periods and I do okay.

Jordan was technically too tall for this ride, but they let him on. Thankfully, he didn't climb off mid-ride!

Jordan was technically too tall for this ride, but they let him on. Thankfully, he didn’t climb off mid-ride!

Oh, the thrill!

Oh, the thrill!

Jordan, not being into make-believe much yet, didn't get the idea of the handle bars, but he loved the driving around bit!

Jordan, not being into make-believe much yet, didn’t get the idea of the handle bars, but he loved the driving around bit!

Brian and Maggie went on a proper roller coaster!

Brian and Maggie went on a proper roller coaster!

Big smiles from both wild ones.

Big smiles from both wild ones.

Anna is following in her mother's footsteps of preferring the tamer rides.

Anna is following in her mother’s footsteps of preferring the tamer rides.

Yep. This one! :-)

Yep. This one! 🙂

Sweet girl. All by herself!

Sweet girl. All by herself!

She is four!

She is four!

Anna and Maggie went on the mid-sized swing ride.

Anna and Maggie went on the mid-sized swing ride.

Jordan was NOT a fan of the little roller coaster that had a sharp, jerky turn.

Jordan was NOT a fan of the little roller coaster that had a sharp, jerky turn.

All six of us rode!

All six of us rode!

We were in front.

We were in front.

We bought the noses!

We bought the noses!

These two are one of my favorite shows. We've watched them two years in a row now.

These two are one of my favorite shows. We’ve watched them two years in a row now.

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Catching Up #1

Back in August, we had our annual family “camping” trip. It’s basically camping, except we’re at my house. Got that? Camping. But with a home and all its amenities like beds, bathrooms, living rooms and all that. We think it’s pretty stellar. We have tents set up and a campfire and hot dogs and spend lots of time outside. 🙂 🙂

We had another batch of adorable kittens back in August!

We had another batch of adorable kittens back in August!

Austin and Brian played with the Erector set that I found at a garage sale. Complete with Baby Tessa!

Austin and Brian played with the Erector set that I found at a garage sale. Complete with Baby Tessa!

Austin is a real pro when it comes to baby handling while playing games.

Austin is a real pro when it comes to baby handling while playing games.

Mom and Dad fixed our breakfast! It's my kind of camping.

Mom and Dad fixed our breakfast! It’s my kind of camping.

So much fun was had by all the cousins!

So much fun was had by all the cousins!

Kids primarily wore dressup... followed closely behind by pajamas.

Kids primarily wore dressup… followed closely behind by pajamas.

It was warm, but not hot and we all went to the park for a nice walk.

It was warm, but not hot and we all went to the park for a nice walk.

The park happens to be by the river... and we were just going to stop and look at it.

The park happens to be by the river… and we were just going to stop and look at it.

Just looking. Staying dry.

Just looking. Staying dry.

Maggie has very good balance.

Maggie has very good balance.

And a sense of exploration.

And a sense of exploration.

It's a beautiful river on a beautiful day. Want to guess how long they stayed dry?

It’s a beautiful river on a beautiful day. Want to guess how long they stayed dry?

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We parents were happy and relaxed.

We parents were happy and relaxed.

Neal was teaching rock-skipping skills and generally being agreeable.

Neal was teaching rock-skipping skills and generally being agreeable.

The river exploration began.

The river exploration began.

All the "big kids" made it across!

All the “big kids” made it across!

Champions!

Champions!

We held the four and unders back on our side of the river. They didn't seem to mind.

We held the four and unders back on our side of the river. They didn’t seem to mind.

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Attachment and School

Ready for the bus.

Ready for the bus.

Here’s a look inside Jordan’s attachment development via his back-to-school note this week.

Intro for new readers: Jordan was adopted into our family from a Eastern European orphanage when he was 2 1/2 years old. He is 7 years old now and has Down Syndrome. Usually though, it’s his time socially neglected in his orphanage crib that affects him more than his chromosomes. His perception of the world and other people is so different due to those 2 1/2 years spent alone. He has a great team at school, but adoption/attachment issues and Down Syndrome are an unusual combination and I wrote this letter to give his team a head start towards success.

September 6, 2016

Dear “Teacher” and all of Jordan’s wonderful team,
Please take the time as soon as possible to read this update and the first of the connected articles listed below. I’m looking forward to working with you this year and am glad to have you on our/Jordan’s team.
~Mom

New school year notes:
• [… some other stuff and then:]
• The biggie: “Orphanage behavior” – continued below
Jordan is a little guy with Down Syndrome. He is learning self-control and sometimes he avoids work out of laziness. But when he acts out he is usually driven by his developmental years in the orphanage. I hear it from seasoned social workers, therapists, parent peers and other professionals involved in helping to rehabilitate children from institutional backgrounds, so please give my words due weight. Jordan has an attachment disorder that causes him to seek control of his environment.

Jordan is a sweet boy, but he doesn’t behave like a nice person when he is manically controlling his environment. He is not learning. Controlling might not be the perfect word, it’s just the closest I can get. It’s not a power struggle and it’s not out of curiosity. He controls his environment for a primal, visceral need for safety. And he does it by doing things he knows you don’t want. It’s a demand for structure and follow-through. He needs his people to follow through to show themselves trustworthy and competent.

If he is able to manipulate his aides, he reverts to these behaviors out of a sort of gut-level fear. He usually giggles and laughs in a wild sort of way and behaves hyperactively. When he is stripping, peeing, peeing where he shouldn’t, grabbing, swiping, running, or flipping light switches, he knows what he is doing is not acceptable behavior, but is not able to control himself, because he is driven by fear and needs us to help him feel safe.

At the moment this starts, which may very well be the moment he arrives at school and continue more intensely for several weeks, STOP EVERYTHING. Have him sit down (chair, floor, corner… so long as it is your choice) until he can sit politely. If he swipes, grabs, throws, slaps, or tries to run off, he should return to sitting. It’s a place of safety. It’s where he has a chance to let his fear cool and his trust grow.

At this point, with somebody he trusts, we can work towards more and more interesting and challenging tasks. He knows you there, so you will get some of this! But it’s been a whole summer and he is developmentally another leap ahead from where he was last year. So I think he is going to test you with a new level of understanding.

With somebody he is still testing, he will fight and fight (adoption counselors describe Jordan’s perspective as feeling like he’s literally fighting for his life) and have periods of exhaustion and tears. Any amount of yield/trust is important to praise immediately. It’s also important that the whole scenario play out with no anger on the adult’s part. We are there helping him find safety. We love him and want his success. Our eyes express love, our postures express patience… and we are strong and resilient and able. That’s the kind of leader he is willing to follow.

It is 1000% worth it to spend lots of time practicing “safe sitting” or “strong sitting” so that you have a foundation of trust to build upon. If he misses art or recess or potty time, etc. that’s too bad, but I expect it will take a fair amount of practice to be able to work up to doing those tasks. It’s my hope that you will be able to help him through these issues and be able to participate in more school activities than ever before. He is developmentally ready for them too! But feeling safe comes first.

I can foresee some challenges if he is not ready to comply but he needs to have his diaper changed or go to the bus, etc. I’m not sure what the best options are for that. Sometimes we just do the best we can.

This is the system that is in place to help him succeed and thank you in advance for your participation. This method and understanding comes from a well-researched and understood background. Because of his developmental delay and being non-verbal, we’re not sure exactly which attachment disorder Jordan has, but we can learn a lot about how Jordan’s brain works by learning about kids with RAD. Here are a few links that will help you gain insight into working with a post-institutionalized child with high baseline anxiety and poor attachment foundation. I think you’ll find them both interesting and useful. Let me know as you see additional needs and have questions.

http://www.attachment.org/letter-to-teachers/
http://www.attachment.org/letter-to-bus-drivers-and-monitors/
http://www.attachment.org/teachers/consequences/
http://www.attachment.org/attachment-disorder-articles/

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Summer from the Cell Phone Perspective

Flexibility and being easily amused is probably not on the college course guides for prospective Occupational Therapists, but man, those are just two qualities that Joanna possesses. She is a unicorn.

Therapist awesomeness.

Therapist awesomeness.

OT time with Joanna!

OT time with Joanna!

Carolyn is such a sweetheart.

Carolyn is such a sweetheart.

I am working towards better physical health by using the Couch to 5K app on my phone. I just finished week 3 and can now jog for 3 minutes straight. I am pretty proud of this since I couldn’t jog for more than a few steps a month or two ago when I started. The app says I’m supposed to jog 5 minutes straight next week. I think it’s mad. We’ll see how that goes. 🙂

Anna and I walked/jogged a 5K together. She got first place for her age group!

Anna and I walked/jogged a 5K together. She got first place for her age group!

Since we’ve been doing well the last six months, we have wanted to provide respite for family and friends. (That’s like extended babysitting in this context.) I got to watch my sister’s kids a couple times when her baby was born and I’ve got to watch my friend’s son Levi a couple times. It really has been a pleasure each time. Yes, there is more going on in the house, yes, it can be tiring to have more kids, but YES, it is a pleasure and an honor on so many levels to provide respite. One, my kids love having other kids here. Jordan too. Two, I enjoy the extra energy in the house. Three, I can manage the additional energy output, because it’s temporary. Four, I love having respite provided for me and it makes me happy to give back.

Jailbirds.

Jailbirds.

Levi finally zonked out after a few days of visiting a new house.

Levi finally zonked out after a few days of visiting a new house.

Meanwhile, I am using any other motivation and energy to make jam. Yummers.

The plum jam is this color, because of the color of the plums!

The plum jam is this color, because of the color of the plums!

MMmmmmm

MMmmmmm

Blackberry goodness.

Blackberry goodness.

There were some relational breakthroughs for Jordan when Levi was over for a week. Jordan struggles to be socially aware and active. The rest of the world moves so much faster than him that he rarely engages with others in meaningful ways. Levi and Jordan, however, are so close to each others speed. They were both modeling and practicing awesome communication behavior with each other. They observed, tried, played, pushed, were puzzled and teased and basically were awesome. They weren’t always enjoying it, but it was so successful, because 90% of the time, they were tolerating and enjoying each other.

This one makes me chuckle. The bowls of soup had just run out. :-(

This one makes me chuckle. The bowls of soup had just run out. 🙁

Jordan's new stroller/wheelchair getting put to good use when Levi tagged along to Jordan's speech appointment last week.

Jordan’s new stroller/wheelchair getting put to good use when Levi tagged along to Jordan’s speech appointment last week.

Blackberry and plum jam.

Blackberry and plum jam.

Peaches!

Peaches!

The peach jam turned out runny (learned that overripe peaches have less pectin) but it's still soooo yummy!

The peach jam turned out runny (learned that overripe peaches have less pectin) but it’s still soooo yummy!

Matchy matchy!

Matchy matchy!

Day 1. Not sure what to do about each other. Trapped in jail for an unknown length of time. Decided to sit on same side of room. (me chuckling)

Awkward beginnings:

Levi tries to engage Jordan:

Jordan engages with Levi!

They were handling this situation pretty well, but I did go in eventually and make Levi let go:

The jumprope

So flexible!

So flexible!

Jordan was happy to hang out like this.

Jordan was happy to hang out like this.

Goodnight sheepies!

Goodnight sheepies!

Goodnight, little farm.

Goodnight, little farm.

This is an elephant cabbage we grew.

This is an elephant cabbage we grew.

This is a normal cabbage we grew.

This is a normal cabbage we grew.

Okay then! I’m off to freeze some cabbage now….

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