Orthopedist Appointment for Jordan

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K – right now I’m in wide-eyed, don’t panic mode. Then I will get into research mode. Then we’ll figure out what the best thing to do is.

Long story short: We went to the Down Syndrome clinic last month for a check-in and check-up and got some good general feedback. At the very end, the PT (physical therapist) noticed Jordan’s hips were really loose. More than she expected or something. She looked more, she called other people over and we got a referral to an orthopedist next door at Shriner’s. This morning was that appointment.

They talked with me, looked Jordan over, had him run up and down the hall and pushed and pulled his legs, feeling his hips especially. Even I could see his right hip klunk in and out of joint (without pain from Jordan). We took xrays of his hips and his c-spine. Don’t really know how the c-spine xray is related (at all) but he wanted it done and I have been putting that off so we did it too. Jordan was pretty scared the whole appointment, but was a trooper and did really well considering I couldn’t explain to him that the xray machine was taking a picture and wasn’t going to chase him down and poke him or something. I was a little wrong though.

His spine xray showed all is well in the spot that can be too loose in people with Down Syndrome. Between the hip xray and the physical examination, though, the doctor recommended treatment to fix his hip joints. This treatment… is not pretty. It involves breaking and resetting his pelvis and his femurs, shortening his ligaments, 4+ days in the hospital and a spica cast for 8 weeks, which goes from waist to ankles with a hole for a diaper. That’s followed by PT and a prayer that it was successful.

Steps now are a MRI to get a better visual on his hip joint (the x-ray didn’t show enough). Then another consult. Then I will take that stuff and get a second opinion, because this does not sound like a good idea to me. No kidding, right?

So now you can freak out and pray with me while I go to my peeps and get more information. I need more input about: what happens if we don’t do it? (loss of mobility? pain?) How successful is it likely to be? Do we have alternatives? Etc.

A spica cast.

A spica cast.

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Heart Talk

A jump back in time - me as a teenager with the hat and bull whip.

A jump back in time – me as a teenager with the hat and bull whip.

I want to share about one of the pivotal moments of my life. Perhaps the most pivotal. I would have been about fourteen or fifteen years old. I lived in a Christian family and done a lot of thinking and researching about whether I also believed in God the creator and His son Jesus and decided that yes, I was a believer.

About this time, my mom brought me, my brother, his girlfriend, and I think Emily (my good friend) and Lydia (my good friend cousin) and some other kids to Christian conference thing. At the end of the main topic, the speaker began giving an invitation. I don’t exactly remember what he said… it was some sort of an invitation to come up and submit to God and be prayed for. I do not know what his words were, but this was the moment, the pivotal moment in my life.

In my heart, I heard things. I knew things. I don’t think I even really heard the words of the man speaking. It was God speaking and He said, “I want you to show everybody that you are mine. I want you to walk forward and confess your submission to me.” I was mortified. I was there with my friends, proud and confident as only a teenager can be. The idea of showing weakness, of being embarrassed by going forward in front of everybody to an altar call was horrible. I.did.not.want.to.

God continued speaking to me. It wasn’t in so many words, but I argued with him internally. I told him no. He told me yes. My heartbeat was loud to my ears and I began to have something like tunnel vision. I did not want to go up, but I felt that I should. I began to understand that to not go up was to deny Him. He told me that if I did not confess him in front of my friends, that he would go away from me. He had been with me since I was a child, but he would leave if I denied Him.

I had a choice.

I delayed. I delayed. I waited while other people went up and while the speaker kept talking and my heart kept pounding. And I knew that this decision was more important than all the decisions up to this day. It was a choice with consequences. An adult choice, if you will. I fought. The part of me that wanted to not change, to stay hidden… it fought. And then I cast my pride down and left myself in the hands of His grace. I stood up and I went forward. I had to climb over the legs of some friends. I think I told them I’d be right back. I didn’t look at anybody I came with – I was too scared. But I wasn’t going to let God go. I needed His protection. I needed Him to stay with me. So I went.

While I stood in the front, nothing remarkable happened. Somebody asked how they could pray for me and I told them I didn’t know. My mom noticed I’d gone missing and came up and found me and I was crying. But I still had so much pride that I couldn’t tell her why I was up there. I didn’t exactly know myself… I just went because God told me to. And it was over. I had obeyed.

A little while later – minutes or hours, I was in the bathroom. It was one of those big venue bathrooms with a long row of sinks and an equally long mirror. I stood there staring at the mirror, washing my hands maybe. And I saw something about myself. I saw the clothes I was wearing. I remembered the motivations that caused me to pick these ones out. And I was shocked with the awareness of the filth of myself. The sinfulness. The selfishness. I recognized for the first time the depravity of my heart and the direction I was headed. I should say, the depravity of my former heart and the direction I had been headed.

Because something was new.

God had taken my obedience and done something new. Something in my heart was new and has never left me since that day. I think it’s what the Bible means when it says “born again.” I felt a new heart inside of me. I don’t know how else to say it. There was something inside of me that was unselfish. It had a new set of hopes and goals in life. They weren’t big long term goals, they were more basic and simple. I think it was when God planted some of His spirit in me – love… joy… peace… patience… kindness… goodness… faithfulness… gentleness… self control. Mostly I remember the pleasant surprise of unselfish thoughts. And the contrast with the thoughts I had that morning. It was a new beginning.

Thank you, Lord, for moments when you have reached into my life and touched me. Thank you for the memory of this day that makes my faith stronger. Thank you for what you did that day. Thank you that you haven’t finished working on me.

There’s still a battle inside me – the old self and the new self. That battle will be over when Christ returns, but I already know who won. And He has never left me. And I am still His.

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February 2016 videos

First video of the first lamb when we all went down and found the newborn lamb:

The lambs all playing outside:

More lambs outside with the Muscovy ducks (you can hear some of their funny quiet sounds):

The littlest lamb has made us worry some, but seems to be doing ok:

Just hanging out in the lamb shed:

At the zoo in the atrium. Jordan tried to climb in the creek as soon as I started the video. :-)

Back when there was just one lamb:

Jordan playing on the “lights floor” game:

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Sheep and Lambs 2016

Can you read this? It says, "Dear tooth fary (Mom) I have lost my tooth. I am sorry but I took it in the kichin and now I don't know whare it is! My tooth is lost but plese give me a 50 cent pese still. Anna wrote this but is from maggie."

Can you read this? It says, “Dear tooth fary (Mom) I have lost my tooth. I am sorry but I took it in the kichin and now I don’t know whare it is! My tooth is lost but plese give me a 50 cent pese still. Anna wrote this but is from maggie.”

Just one lamb.

Just one lamb.

That first lamb, the first morning.

That first lamb, the first morning.

The boys.

The boys.

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That duck.

That duck.

The first lamb - Halo - little ewe lamb. So precious.

The first lamb – Halo – little ewe lamb. So precious.

We have a large male muscovy duck that needs to go. Maybe we will eat him. See how huge he is!? We have two males and this is the one we're not keeping.

We have a large male muscovy duck that needs to go. Maybe we will eat him. See how huge he is!? We have two males and this is the one we’re not keeping.

Looking down at the chicken coop/sheep pen over the garden.

Looking down at the chicken coop/sheep pen over the garden.

Fresh mulch is so pretty against spring grass.

Fresh mulch is so pretty against spring grass.

"I can do it!" said Carolyn of the clippers.

“I can do it!” said Carolyn of the clippers.

I don't remember why she was wearing my sweatshirt. I believe it was simply because she could reach to get it down.

I don’t remember why she was wearing my sweatshirt. I believe it was simply because she could reach to get it down.

This little sweetheart steals our heart a dozen times a day.

This little sweetheart steals our heart a dozen times a day.

She is extremely self confident. Can you tell?

She is extremely self confident. Can you tell?

A pretty sight.

A pretty sight.

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That's the shop we rent out.

That’s the shop we rent out.

Here is Spot, tending to her several-day-old lamb.

Here is Spot, tending to her several-day-old lamb.

Here is Brownie... waiting for her lambs to be born.

Here is Brownie… waiting for her lambs to be born.

Us.

Us.

Triplets for Brownie!!!

Triplets for Brownie!!!

A large ram, a medium sized ewe and a small ram all born to Brownie.

A large ram, a medium sized ewe and a small ram all born to Brownie.

Admiring crowd.

Admiring crowd.

Brownie has her... hooves full keeping track of which ones are hers.

Brownie has her… hooves full keeping track of which ones are hers.

Anna is a great 4-H newbie with these lambs.

Anna is a great 4-H newbie with these lambs.

Carolyn and one of the lambs.

Carolyn and one of the lambs.

Maggie is looking so old in this picture. 6 1/2 years old!

Maggie is looking so old in this picture. 6 1/2 years old!

Brownie is a very good mother.

Brownie is a very good mother.

At tired and attentive Brownie, the morning after a night's labor.

At tired and attentive Brownie, the morning after a night’s labor.

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Sire.

Sire.

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This is the smallest ram lamb. His hair is different too.

This is the smallest ram lamb. His hair is different too.

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Brownie doesn't really like us playing with her lambs.

Brownie doesn’t really like us playing with her lambs.

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Awwwwww

Awwwwww

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Outside!

Outside!

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I want to draw sheep.

I want to draw sheep.

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So that’s it! We are enjoying being farmers. Fencing and hay are costing more than I expected, but if I put in terms of cost for an education, we’re still getting a good deal. I’m really loving having this special thing to do with Anna too. She is almost nine years old!

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Pictures February 2016

There was a week in February when all Jordan’s teachers were sick… but we were not. I took advantage of that and used all my pent up cabin fever energy on several fun field trips with all the kids.

First up – The Portland Art Museum

Meet three young guinea pigs - Panda, Snowflake and Blackie.

Meet three young guinea pigs – Panda, Snowflake and Blackie.

Here we are eating lunch at the Portland Art Museum!

Here we are eating lunch at the Portland Art Museum!

This room had streamers hanging from the ceiling and blowing around. With the music, it was a big hit for Jordan.

This room had streamers hanging from the ceiling and blowing around. With the music, it was a big hit for Jordan.

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Honestly, it was a hit for all the children. Mostly... I just wanted to clean it up.

Honestly, it was a hit for all the children. Mostly… I just wanted to clean it up.

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On of the more interesting pieces we saw. I could puzzle over this one for awhile. There were plenty of art pieces that just made me... puzzled.

On of the more interesting pieces we saw. I could puzzle over this one for awhile. There were plenty of art pieces that just made me… puzzled.

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Smoosh!

Smoosh!

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So glad I got to go with a friend.

So glad I got to go with a friend.

Next, we went to a playground (not the same day):

Walking the loop with Jordan.

Walking the loop with Jordan.

Proud of the girls for doing something that is scary for them.

Proud of the girls for doing something that is scary for them.

We also went to the zoo that week:

Now... being this close to a bunch of sleeping LIONS was scary to me!

Now… being this close to a bunch of sleeping LIONS was scary to me!

The poor cheetahs did not seem as well adapted to zoo life as the lions. They were alert and on guard towards us at the window.

The poor cheetahs did not seem as well adapted to zoo life as the lions. They were alert and on guard towards us at the window.

Jordan loved the water in the atrium.

Jordan loved the water in the atrium.

Another place we visited was a large indoor playground while waiting for the girls’ swimming lessons:

I love this series of photos of Jordan in the balls/vacuum room - it shows so many of his unique expressions and postures.

I love this series of photos of Jordan in the balls/vacuum room – it shows so many of his unique expressions and postures.

All the girls were with me too of course - just got a little carried away enjoying Jordan for once.

All the girls were with me too of course – just got a little carried away enjoying Jordan for once.

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Silly big sister. She is ever so big!

Silly big sister. She is ever so big!

More in the next post!

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