I’m rather proud of this, so posting it here:
October 12, 2014
Dear School Team,
We are extremely grateful for the work you do to teach Jordan and to help develop his IEP. For us, having a detailed IEP is about coordinated support for Jordan. It helps us get our own goals and priorities straight; it helps us communicate clearly with you and with private therapists. And, should we ever move, it would help a new teacher come up to speed.
To get us started, I developed a list of 12-month goals. I highlighted the goals that seemed of highest priority to me, but I’ve included all the goal areas to give a better idea of his overall need and also so it’s part of his IEP folder. I did have a hard time choosing the highest priority goals and am open to rearranging which goals go on his IEP or not!
I’m really looking forward to your feedback as you adjust these goals and incorporate any other goals.
Thank you again for the good service you do for both Jordan and our family,
Brian & Rachel Davis
1. Gross Motor
2. Adaptive / Motor / OT / Self-Care / Feeding
3. Pre-academic / Motor / OT / Fine Motor
• Crawl willingly for 3 minutes (strengthens hands, coordination, brain and vision development)
• Walk up and down stairs without marking with balance, using one hand rail or a helper’s hand
• Be able to climb both up and down ladders without support
• Hang from hands for five seconds (holding to trapeze bar or similar)
• Walk halfway across balance beam or similar with only one hand support
• Learn a true running gait
• Learn any sort of jump (suggested: two-footed vertical jump of any height)
• Respond to music with dance or motions 75% of the time when appropriate
-Endeavor to give Jordan minimal physical assistance and support while navigating the room and playground to encourage development of vision, coordination, pacing, strength and general navigation skills. (He would like to hang on people’s hands)
-Have many opportunities for squatting, balancing and crawling or climbing through obstacles.
Adaptive / Motor / OT / Self-Care / Feeding
• Participate in potty time 1-2x a day with 75% success in engagement by: climbing onto potty, sitting down and balancing independently, peeing in the potty, laying down/standing still willingly for diaper, putting feet into pants (if needed), standing up, pulling pants up with support and helping with any other steps in the process.
• Be willing to touch and manipulate undesirable foods 100% of the time (put into bowl, stir, push around… pretty much anything experimental that’s not throwing or otherwise rejecting)
• Be able to self-feed with a spoon with minimal spills or support. (minimal support: Setting bowl and spoon in front of him and allowing him to do it on his own with no major spills)
• Be able to scoop and pour a variety of substances, both wet and dry, with 80% accuracy of it going where intended.
• Willingly clean up toys or supplies when requested 80% of the time
• Be able to drink from an open cup without support 80% of the time.
• Make progress in eating pacing so that only verbal support is necessary to help him eat more slowly 100% of the time. (eg. Saying, “Not yet.”, “Wait.”, “Ok, take a bite.”, etc.)
• Successfully take 1-2 bites of previously rejected foods upon request 50% of the time. ONLY foods currently accepted are: crunchy meltables like crackers/pretzels, pudding/yogurt/some soups, and occasionally a cookie, chips or popcorn.
• Ride a bike or car that for 3 minutes that is propelled with feet on ground (instead of pedals)
• Remove jacket by self and hang up and be helpful in putting coat on 100% of the time.
-During feeding time is one of the best times to practice communication, as his most understood signs for using with only verbal prompting are: “Eat”, “Drink”, and “All done.”
Pre-academic / Motor / OT / Fine Motor
• Be able to intentionally place stickers on paper or “stickies” on windows down to 1” in diameter
• Appropriately play with sensory bin items for 3 minutes by scooping, pouring, exploring, etc. without throwing or putting in mouth
• Stack blocks or other items 5 high without help
• Be able to thread 2 items onto string/rope (of any size – could be toilet paper rolls on a rope or extra-large wooden beads)
• Match identical items to each other with 75% accuracy and move on to matching items with photographs of identical items
• Learn to play appropriately with a variety of types of toys, becoming familiar with ten different toys, including those that are for interactive games with others.
• Learn to manipulate five things that require two hands (hold and twist, hold and thread, hold and ____, etc.)
• Manipulate puzzle piece into puzzle independently 75% of the time (even 1 piece puzzles)
• Be able to tear papers in half that are as small as 3” in diameter
• Be able to draw/paint/color with these strokes: up/down, left/right, circles
• Be able to paint, dipping his own brush and applying to paper
• Understand the concept of creating or changing, making bigger/smaller with legos, playdough etc. by willingly playing 3 minutes
• Use pincer grasp 50% of the time for picking up small objects
• Use isolated fingers 75% of the time for pushing buttons, pointing, turning pages, playing piano, etc.
• Turn board book pages independently, just 1 or 2 pages at a time
-Jordan really wants to play with his siblings when he is at home, but does not know how to appropriately initiate play or how to participate in games that are already begun. The more basic concepts of manipulation of objects and familiar game phrases he can be familiar with (such as, “give, wait, come, etc.”) the more success he will have with peers on a day-to-day basis.
-For best attention and focus it really helps to have an absence of distractors or anything moveable of any sort. Stim toys are especially distracting (for Jordan: strings, ropes, slinkies, beads, singing toys, flashy toys). Stim toys are really important in helping Jordan when he is overwhelmed and needs to disregulate and refocus… but during the actual practice times, you will sometimes find it better to move them out of sight.
Social / Appropriate Play / Engagement
• Shows increased engagement with peers or one-on-one/teacher, interacting with attentiveness and some reciprocal play for five minutes in a row
• Mimics a wide variety of gestures and activities 50% of the time when prompted (blowing, waving, clapping, dancing, running, drumming, driving toy cars, stacking blocks, putting “in”, etc.)
• Participates in 3-5 songs with motions (fingerplay) with decreasing support until doing 50% of motions independently
• Sits patiently during circle times or similar for 5 minutes in a row without toys/food/etc.
• Learns 10 new appropriate, non-stim activities and games
• Plays a variety of musical instruments for 2 minutes at a time (drum, piano, xylophone, recorder – in order of how easily he does this now)
• Takes turns 10 times during a play time (similar to goal on top of list)
• Increase emotional regulation and ability to not melt down, hit, throw things or otherwise disregulate when overwhelmed, sad, disappointed or sad, having fewer or milder negative episodes at the end of the year than the beginning. Due to his background, his ability to coregulate or be calmed by others is very underdeveloped, so desiring having people present or otherwise involved with him while upset is a sign of progress.
• Developing attachment to particular people is a sign of growth in Jordan’s social development: please note progress in his trust and/or preference for any individuals, with a goal of having 1-2 “special” people that he prefers. (At this point in time, he has no people he is emotionally attached to, including his parents, so we would really both appreciate relational growth being permitted as well as appreciate feedback on this)
-Due to Jordan’s history of neglect and his developmental delays, he needs intentional teaching regarding social awareness and stranger safety. He needs to learn to approach new people slowly and to offer high fives or handshakes and to refuse climbing in the laps of strangers or new friends and adults. All support you give in this area by teaching him appropriate physical boundaries and slowing down introduction to new people to “practice” becoming familiar with new adults and friends would be appreciated.
• Make choice between two photographed options 75% of the time (His private SLP recommended starting with just one photo that he can “request” and learn that pointing/patting a photo gets him that item/activity. She also recommended starting with a very simple, very obvious photograph that is not too small.)
• Practice 10-15 expressive signs throughout the day, gaining 75% proficiency without physical prompting. (eg. “Crackers, music, outside, clean up, pointing/that, potty, eat, drink, more, all done, wait, go”)
• Participate in voice play, making intentional vocal sounds 75% of the time the game is played (into tube, into box, into microphone, whatever works)
• Model early pretend play, driving cars, brushing doll hair, playing with hats, and more simple doll play, etc. Showing engagement and understanding and participation 50% of the time.
• Begin to understand more spoken language, being able to identify 3 body parts, 3 toys and 3 people by pointing or touching
• Responds appropriately to 5 most-used spoken requests with or without gestures: “Give, Stop, Come here, Sit down, and Clean up” 75% of the time
• Make choice between two physical, reachable choices by pointing 100% of the time. (eg. “Cracker or juice?, Truck or ball?”)
• Initiate already known expressive signs 100% of the time correctly without prompting (eat, drink, more, all done)
• Makes requests in appropriate ways, like directing an aide’s hand, pointing, or otherwise communicating without the aide having to guess 75% of the time
• Recognizes and pats the correct next activity on photographed daily schedule 75% of the time. (Would have a daily schedule picture board with actual photos showing about four main parts of his school day that he could visit and pat/point at before each of those activities.)
• Make 1-3 specific sounds upon request 25% of the time (eg. “mmmmmmm, EEEEeeeeee, buh-buh-buh,” etc.)
• Understands and participates in “my turn, your turn” 75% of the time when requested
-For frequently used words/vocabulary, our private SLP used drawn out first sounds to encourage first speech: “mmmmmmmore, eeeeeeeat, g-g-g-give”
-For the choice board (starting with one option and moving up to two or more), these are some first choice ideas: Cracker, pretzel, cookie, juice, swing, outside, playground, sea horse, beads, bath, quiet corner, fingerplay, music
-Please communicate to us which signs he is exposed to
My list is long, but my desk is messy and some of the things on the list are challenging…. so I’m doing something easy first: blogging! Then I will figure out health insurance, IEPs, chores, homeschooling and whatever other stuff I’m not remembering that is a-piling up.
Favorite concepts from chapter one of the book my mom friends and I are reading (“Loving our Kids on Purpose”):
- Just like a carpenter does much better with more tools than just a hammer, parents will have more success with more tools than just intimidation.
- Parenting out of fear (of failure, of our kids being failures, of losing their respect, etc.) does not help our kids grow up respecting us.
- God loves us no matter what. He is the best place ever to go when you make mistakes, because he will help you through them. Wouldn’t it be great if our kids thought of us as such a safe place.
- Relationship with our children is more important than….. obedience…. you name it.
And now… some pictures!
6am Woke up and immediately sat up.
6:03 Realized I was dreaming sitting up and lay down again
6:20 Woke up for real and pulled warmer clothes over jammies.
6:30 Read a couple Web comics and checked Facebook.
6:40 Ate breakfast that my incredible husband fixed for me and filled four juice cups.
6:50 Made bed and began to sort stuff from desk on the bed in hopes of making a list. (desk occupied by husband working from home today. )
6:51 Brought Maggie onto our bed, because she seems to have a fever and was crying.
7am Anna wakes up and the girls go downstairs to eat breakfast. The thermometer didn’t detect a fever, but Maggie gets her daddy to carry her downstairs with a very pathetic whimper and request. I try again to sort desk piles.
7:07 Carolyn wakes up and I bring her downstairs to her juice and scramble eggs for her and Maggie. Anna prepares bagels.
7:11 Went upstairs and dressed Jordan, washed his face and got his shoes on.
7:20 Fixed Jordan’s breakfast and feed him. He is cranky this morning and only ate half his breakfast. I move his obstinate self into the play room and fill out a communication sheet for his kindergarten teacher and tuck it in his backpack.
7:45 Helped Carolyn dress herself (she wants to do it herself), finally responding to the much repeated call of the last two minutes. (mommy! mommy! mommy! ) She takes herself to the potty while I clean up some clothes on the floor.
7:54 Go to sit down to make my list at last and see the bus pulling into the driveway, so I run down and get Jordan onto the bus, letting the driver know that if he melts down and cries for long that I want a phone call… He seems happy to see the bus and I get and give hugs with Anna and Carolyn in the garage on my way back in. Anna offers to feed the cat.
8am Maggie gets started on chores and I try to decide how much of her behavior is sickness and how much is an act. Anna is doing great with her chores, Carolyn has wet undies and is on the potty again.
It’s 8:22am and my desk stuff is sorted into piles. and I am ready for a nap.
Update: Slept 9am-10am
One little story:
There once was a little girl named Carolyn. She turned two years old. The next day, she decided she was big enough to go potty in the big potty. Ask her, she will tell you she is six. She left her clothes and diaper behind her and began sitting for long periods of time on the porcelain throne. Ummm… she is going through a lot of underwear AND diapers, but she is potty training herself pretty well, so far as I can tell.
Being a parent throws surprises at you for sure! Crazy kids.
Here is Carolyn opening her birthday card from Grandma Chapman. Sorry, Grandma… she tore the silver dollar right out of the card!