From Confinement

Hello from self quarantine, self isolation, social distancing, stay home – stay healthy, or whatever other new vocabulary I’ve learned in the last month. Has it only been a month? I began hearing about something called the Coronavirus back in February or March… I remember, because my brother’s work trip to China was cancelled which was actually really helpful in making a birthday celebration for my dad successful. When was that? February 23rd. A week before that, we were at a highly crowded social dance. Less than 3 weeks later, (March 13th) we decided it was time for our family to lock down… and over that weekend, the schools started closing. Later, nonessential businesses closed, Brian started telecommuting, and here we are now… schools closed until next fall. Other than a few grocery trips and take-out restaurant orders, we’ve been home for four weeks.

So, what have we been doing?

Well, amazingly, an awful lot has not changed at all! There are still five children living here and our school year was not cancelled or even changed much. Art, Taekwon Do, and Ballet were our regular outings (besides visiting family and friends, running errands and so forth.). Art class stopped for the year, but ballet and taekwondo hardly missed a beat and switched over to live video classes! I am so impressed! The teachers have been wonderful. I’m a little worried that ballet might start back up again (in person) before we can lift our isolation… they are pushing for early opening, but I lean towards the conservative end of the isolation situation. But anyway, things are going really well right now and this is a situation that’s been best to take one single day at a time. More than usual.

Brian is growing a beard. He’s wanted one many times over the years, but he’s just not a particularly hairy man! But finally, at age 37, he has the necessary follicles for growing a handsome blond beard. Know something that’s surprising? Seventeen years ago, 37 sounded really up there. And now that we’re here… well, I’m still surprised how we are the mature, older-parent people now. Not parents of college kids or even high schoolers yet, but we have the confidence and experience that comes with so many more years alive. Interestingly…. it comes with an equal measure of being aware of how little we know. There are so many things that we can do now and deal with, on a practical level, intuitively and on autopilot that we couldn’t do at all early on. Managing the grocery-food thing for all these different people and needs, chores, homeschool, errands, lessons… it’s really an astronomical weight of impossible-to-remember-it-all-much-less-do-it-all dimensions, but we just keep doing “the next right thing” (Thanks, Frozen II!) and it’s been enough.

Anna is turning thirteen years old next week! She’s amazing. It’s amazing to watch her develop her gifts and interests. She’s exploding in her independent capabilities. Yes, the moodiness, intermittent frustration, and quite frequent groans are present as you might expect with a non-emancipated older child, but the resourcefulness, kindness, and curiosity are there too. She’s a lovely dancer, a wonderful painter, a great gift-giver, and thoughtful daughter. She can often be found cooking (and often even cleaning up!) and even more often can be found painting. If she’s not doing that, she’s reading… going through huge numbers of novels. Since the quarantine has started, she has discovered that I wasn’t making things up when I said that phone calls can be fun for kids her age. Just three phone calls (about one a week) so far, but I think over 6 hours logged between them.

Jordan is turning eleven soon and he’s doing fine. He’s a bit bored with being home all the time and he prefers to be alone in his room. We drag him out to eat and toilet and invite him to hang with us a few times a day, but he doesn’t usually last very long before wanting to go be in his space again. I’m looking forward to him being able to access ABA therapy again soon as things open up. Not that I really want the pace to pick up at all… but it’s a way to push him out of his shell successfully. He’s enjoyed the sunshine this week (so thankful for a break from the rain!) and will play in the grass and rocks for a long time, before signaling he’s ready to go back inside by being naughty… usually by eating things that are unsafe. (Now I’m the one rolling my eyes! It’s not limited just to teens.)

Maggie is ten years old and bright and eager as ever. She has strong curiosity, a strong sense of justice, strong food aversions, strong loves for things that are lovely and wild, and loves to get deep into invented adventures with Carrie. She has two garter snakes that are faring very well… she’s collected so many snakeskins from them over the winter. She also now has two Northern Alligator Lizards, but I’m growing concerned that they may not be eating well. Not sure. We may have to release them again. She is missing doing Taekwon Do in person, but is persevering to keep her skills up so that she can test up to the next belt as soon as we get back to class. She is a capable cook and made her first muffins the other day.

Phew – I’m getting tired. Let’s see if I can write a bit more before signing off.

Carrie is seven and you know that if a child is running toward you, it’s her. She doesn’t walk much… she’d much rather run. She loves to talk, snuggle, create, explore, play, and talk some more. She’s very smart and capable and is often the first done with her schoolwork. She loves playing Minecraft and is growing more competent in creating more elaborate creations. She also reads a great deal, though lately she’s decided that she prefers comics and does not like chapter books any more! Ah well, she’ll be back when she’s a little older and can enjoy some of our family’s favorite series.

Speaking of reading – since the quarantine started, when we need an hour of something “special” to cheer us up in the interminable sameness of each day, we’re reading the first book of The Lord of the Rings together out loud. It’s been nice. I also ordered a few craft supplies to make sure we’re able to keep creating. A few paints, two wood burners and a few wood things to make projects on.

Daniel turned seven years old this week! Hard to believe! He’s a funny kid – sometimes very intense (as one would expect from a kid with a hard background) and often very focused (as is unsurprising for a person with autism) and very much mobile. He’s not walking independently yet… he really resists letting go and walking without holding on. Brian and I have been too tired to add home therapies to our list, but he’s learning and able to go all over the house. He will walk eventually and he’s weight bearing significantly enough that his bone health should be fine. We were supposed to leave tomorrow (Easter Sunday!) to take him back east again for more treatment of his feet. Alas, that was all postponed to be rescheduled after COVID-19 calms down. He’s drawing and writing better – making endless little drawings of clocks, including the numbers, the cord, whether it’s AM or PM and other various details I never noticed before about clocks. He remembers how to spell things if he listens when you tell him… so I think it’s probably time to buckle down and try to teach him to read more formally. Not sure… he is not one for following instructions or sitting still, so that would be challenging!

Speaking of challenging, Brian and I struggle regularly (or you might say chronically) with fatigue. You know, for years. We know we’re extra tired if we get the body aches or I get migraines now too. It’s not unusual for me to not be able to function very much at all past early afternoon. Sometimes all I get is until lunchtime and then I limp through the rest of the day. Sometimes depression and/or anxiety kick my butt too. We’re not the giving up sort, though, so we just do what we can and it’s gotta be enough.

Since the new year, I’ve set myself a few personal goals. Since I was diagnosed with Ehlers Danlos Syndrome last fall and have learned more and gotten doctors’ advice, both my fitness and my healthy weight goals have become more important. The doctor’s orders for exercise combined with my now seven year history with depression means that I have been looking very seriously for how to be successful with this whole personal health thing. Last fall I went to physical therapy regularly and started Taekwondo. But in February, I got myself psyched up and set up for daily, sustainable exercise. I have a chart I made that I’m filling out and I’m rotating a careful 30-minute strength training routine with a 30-minute walk/jog. It’s set as higher priority than even homeschooling and I am doing one of these things about 6 days a week! I’m proud! I keep gaining weight also, which is putting pressure on already-fragile joints, so two weeks ago I made a reward chart for myself for some attainable food-related goals. Turns out, I’m money motivated, so I’m paying myself what I would have been paying to a physical therapist. It mostly keeps me from the need for a talking therapist too, so that’s $$ too. I’m only new to the food-related goals and no weight lost, but no weight gained, so I am content.

The money is partially motivating, because I am feeding some personal hobby interests with it! Leatherworking and home alchemy stuff mostly… like lotions and candles and stuff.

Okay. I have just a little time left and I want to watch an episode of a tv show. The kids are all having their screen time now and the boys are content… so – goodbye!

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A punch in the gut

Psalm 3

1 O LORD, I have so many enemies;
so many are against me.
2 So many are saying,
“God will never rescue him!”
Interlude
3 But you, O LORD, are a shield around me;
you are my glory, the one who holds my head high.
4 I cried out to the LORD,
and he answered me from his holy mountain.
Interlude
5 I lay down and slept,
yet I woke up in safety,
for the LORD was watching over me.
6 I am not afraid of ten thousand enemies
who surround me on every side.
7 Arise, O LORD!
Rescue me, my God!
Slap all my enemies in the face!
Shatter the teeth of the wicked!
8 Victory comes from you, O LORD.
May you bless your people.
Interlude…

It’s easy for me to read the above kind of hurriedly and not be stirred in my heart. But Psalms is the book of God’s poetry. It is often the guttural cry of his people as they suffered, crying out for deliverance. It is meant to move me, to break the dam around my feelings, and cause me to bring them to my God, and receive His comfort and truth in return. To let Him strengthen my heart and resolve.

This Psalm has a heading:

A psalm of David, regarding the time David fled from his son Absalom.

For some reason I read that slowly today and it landed like a sucker punch.

Absalom, David’s son has been secretly forming a rebellion against his father for years. Some of David’s advisors, his friends, have turned on him. The whole country, David is saying, has lost hope in him. They’ve gone over to Absalom. David has too many enemies. He’s become irrelevant and outdated. He is old. He screwed up raising his kid. David must have felt the ache of loneliness and abandonment, the twisting knife betrayal. He must have been angry, furious, that the kingdom he’d literally built of sweat, tears and blood was taken from Him. Maybe he was racked with guilt that he raised a son so greedy for power that he’d stab his own father in the back. He was probably worried about what will happen to his beloved people. He’s just had to escape the city he loves, the temple and ark left behind. He probably feels that God has given up on him.

2 Samuel 15:25-26

“If the LORD sees fit,” David said, “he will bring me back to see the Ark and the Tabernacle again. But if he is through with me, then let him do what seems best to him.”

2 Samuel 15:30

David walked up the road to the Mount of Olives, weeping as he went. His head was covered and his feet were bare as a sign of mourning. And the people who were with him covered their heads and wept as they climbed the hill.

Pause and consider how David felt.

But God is a shield. When my soul is committed to Him, there is a part of me, the eternal part, that is untouchable, incorruptible, invincible. No disease, no guilt, no shame, no hurt, can stick to that part of me. God is my true glory, true righteous. He is my “anchor within the veil”. What I do and what is done to me cannot change the fact that God holds me up. Here is the toehold, that brings David back from the brink of despair. He cried out and God answered him.

Cry out to God, pause and listen for His answer. Hear it come down the ages.

Oh my soul, rest in the peace and security of God holding you. Do not be afraid of the dangers and enemies surrounding you. These are small and passing, but God is eternal and holds the future. As David walked up the Mount of Olives, he wept. What he was going through was brutal. I’d venture to say he felt hollowed out and utterly defeated. His world was falling into a chasm of disaster. But as he wept and prayed he brought his heart back around to it’s foundation. In the beginning he’d called for God to rescue him and now he’s calling again. Rescue is something we need daily… we look forward to the day when His rescue will be final.

Many years later another King wept on Mount Olives. He faced betrayal there. He was surrounded by enemies. He told them His name and they all fell down. But then He went with them and faced our enemies for us. Though David prayed for God to “slap the face of my enemies”, Jesus let His enemies slap His face. The teeth of our true enemies, sin and death, were shattered by the King who won the victory.

Be still, my heart, pause, and remember.

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Pictures from February and March

Favorite family photo…. as the tripod blew over!

Hello!

I’ve wanted to blog a million times, but haven’t. I am going to upload a bunch of pictures, caption them, and call it a blog post! Then I’m going to cook some chili and vacuum some floors.

Okay. January. January was hard. Difficult beach trip and overextended physically and emotionally…. and repeated mild illnesses. Not all bad, though – the beach was beautiful, schoolwork went fine, and I dove back into my old favorite craft: leatherworking!

February!

Ballet observation day, English Country Dancing (crowded and fun! Pre-Coronavirus situation!), and a family gathering for my Dad’s birthday!

Top of the “mountain!”

Dad’s birthday in the Mellinger’s new house!

The view from a hike with Brian

Endless oranges

Maggie, teaching Neal and Nora some taekwondo.

Grandpa before falling asleep! (Actually, I think he stayed awake for his whole birthday!)

Dad’s birthday party – the whole family was there! (My parents and all their kids and grandkids)

This icebreaker dance is the longest follow-the-leader!

English Country Dancing!

My pretty mama and my sister’s baby!

My big boys

Tessa playing with (pestering?) Daniel.

Sisters! I went through a lipstick phase for two weeks. It was fun.

I mostly took pictures of stretching.

Core workout!

Port au bras

Stretching!

Warmups

Daniel has been looking at books lately! Here he is with Garfield in a swing.

I’m exercising regularly! Alternating walking/jogging and a home workout, modified for my specific join issues!

We were sick for a few days… Anna was napping it off with her headphones and puppy.

March…. when somebody figured out that the Coronavirus is something to take seriously.

Little “Mini” got some shedding done with my help!

Boots in the sun!

Time for a picnic lunch!

My little shaded flower bed got a much-needed weeding for spring. Also planted some hostas, bleeding hearts, and another flower in with the primroses.

Sunny days.

Captain got a haircut!

Gorgeous morning hike!

Making beeswax lotion bars in my “double boiler”

I love flannel.

The lotion bars are poured! I incentivized my daily exercise with a reward for every 14 days completed. I’m money-motivated and was so excited to buy the supplies for making these!

Young sourgrass sprouting. (I think it’s really called wood sorrel)

Before the Coronavirus, I wore weird things to help with my hypersensitivity caused by some virus. It’s moderating finally, so I can do things without all the extra layers most days now.

Surprise single day of snowy winter!

My children are so creative! They have so much fun!

I don’t know where this train was going.

The finished “Organic Beeswax Lotion Bars” in their gift packaging.

Prettiest birdbath around, thanks to some shells from my uncle Kevin.

Spring!

Senior Master Mason has found a way to keep us all connected and practicing taekwondo together still.

Surprise snowy day!

Half of my lotion bars are these pretty things! The other half look like the cupcake liners they came out of…. those are the ones we’re using ourselves.

Buddy is a big boy! My kind neighbor allowed me to go groom!

Found a few more from February when our friend came and helped us with yardwork for a whole day!:

Pulllllllll!!!!

Daniel wanted to go outside, but it was still too cold and wet for him to scoot in the grass.

haha

Maggie found a cool rod.

Everybody helped!

Helpers!

River came to help! Here is Maggie taking a break with him.

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A dream

Play in the background if you want.

there is a God in heaven who reveals secrets – Daniel 2:28
I often find myself bewildered by the suffering people endure, the hate that people spew at each other. I am overcome with the wonder and beauty of creation. I am in awe of the love that people show, the mercy and kindness that warms my heart. How can these things all be mixed up in one world, one people? Does anyone have a plan or purpose in it? These are mysteries and secrets. Thank you Lord you are behind them all, working them to bring greater glory and goodness into being. You will heal and redeem every hurt. You will nurture and grow every beauty. All will serve to create your better kingdom. You will reveal it.

The way of the righteous is like the first gleam of dawn, which shines ever brighter until the full light of day. – Proverb 4:18
I used to think this verse meant I wasn’t very righteous, because it seemed like I was stumbling around in the dark a lot. But I realized that if the dawn is just a gleam, there is a lot of dark around. In the early morning, when the eastern sky is just barely a gleam of light, look anywhere else and it’s dark and hard to see. But the promise is still there. Nothing can hold back the dawn. The Son will rise to the full light of day.

So you have sorrow now, but I will see you again; then you will rejoice, and no one can rob you of that joy. – John 16:22

Those who have been ransomed by the LORD will return. They will enter Jerusalem singing, crowned with everlasting joy. Sorrow and mourning will disappear, and they will be filled with joy and gladness. – Isaiah 35:10

The sorrow and darkness is here now. But it won’t always be this way. The dawn is coming. He will see us again. We will see Him. We will rejoice. Like seeing the light after a long, cold night. It won’t matter what dark memory is in our hearts, the Son will heat every corner and burn away every cobweb. Nothing you’ve done or has been done to you can dim that light. He will give us His joy.

When everything is ready, I will come and get you, so that you will always be with me where I am. – John 14:3

I had a dream that I was waking
At the burning edge of dawn
And I could see the fields of glory
I could hear the sower’s song

I had a dream that I was waking
At the burning edge of dawn
And all that rain had washed me clean
All the sorrow was gone

I had a dream that I was waking
At the burning edge of dawn
And I could finally believe
The king had loved me all along

I had a dream that I was waking
At the burning edge of dawn
I saw the sower in the silver mist
And He was calling me home

The Burning Edge of Dawn – Andrew Peterson

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Daniel Eating

Daniel has probably never had a positive eating experience. He definitely has experienced extended trauma surrounding food and eating.
He has not eaten with his mouth since we got him home and to the hospital, October 2017. We’ve given opportunities, but no pressure. He’s calmly told us no and trusted that we won’t force feed him.
This weekend, I asked him to stop refluxing into his mouth… it’s bad for his teeth. He was distraught. Trauma sucks, y’all. He struggled with this demand in deeper ways than I expected when I told him “all done burping in mouth.”
Then I offered him to use the syringe to put food in his mouth that way instead. I told him it was like a pretend burp.
Friends….. look!!!!!!!!!!!

A:

B:

C:

D:

He’s eaten more than half his meals this way for three days now. I’m so proud of him!!!

For fun:

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